ENCA MEETING ATHENS, Friday 15/9 Saturday 16/9 pain and self management, other inflammatory diseases

CHILD IN THE LEAD

On behalf of the committee of ENCA we would like to invite you to our conference in Athens

Please join us for the welcome ceremony on Thursday 14th September at 6pm and our ENCA conference on 15th/16th

For more information please contact us on secretary.enca@hotmail.com or see the PRES website http://www.pres.eu/pres2017/scientific-programme.html

The tentative ENCA program is given below :

 

FRIDAY, 15/9/2017: OTHER INFLAMMATORY DISEASES, LATEST RESEARCH AND PreS

9.00 9.45

Opening, introduction of a program and participants, welcome to all, achievements of the committee till now and financial report, summary of a hole year (are they happy with communication, what do they miss, what else should we do for better cooperation between Associations etc)

WENDY PRESIDENT OF ENCA and YONA (financial report and budget overview)

9.45 10.10

OTHER INFLAMMATORY DISEASES

KAISZ Netherlands - Autoimmune and inflammatory diseases (Saskya)

10.10 10.30

OTHER INFLAMMATORY DISEASES

LUPUS UK

10.30 11.00

Coffee break

 

11.00 12.00

Introduction of ENCA members (associations):

GREECE, ITALY, DENMARK

12.00 12.30

SPEED DATING

Working in 3-4-5 small groups, survey for help (Yona)

12.30 14.00

LUNCH

 

14.00 14.30

New developments and new  strategies : optimising treatment  in JIA 

LUCY R. WEDDERBURN , professor and Consultant of Paediatric Rheumatology, UCL Institute of Child Health London

15.00 17.00

JOINT SESSION WITH PreS (we go there all together). Program:

1.      introduction of ENCA (Wendy) + parent story (Glenda Dalton)

2.      What is really bordering my patient/parent? Parent: Mirjam, Patient: Simon Stones, HPPR: Jan Jaap

3.      Finishing SHARE project from the parent perspective (analyzing the results from parent`s perspective)

 

Room No.: SKALKOTA HALL

19.00

DINNER FOR ALL

Organized by Greek Association

 

 

 

SATURDAY, 16/9/2017: PAIN MANAGEMENT, SELFMANAGEMENT, TEENS AND US

9.00 9.10

WELCOME again, summary of Friday + PreS

WENDY, YONA, ANITA, ANTON , MIRJAM

9.10 9.30

Patient story: SIMON (UK) and MANCA (Slovenia)

SIMON STONES (about his experience with the disease since the beginning, teenager, now, pain management, things that helped him), his role now in JIA + patient: MANCA KEPIC Slovenia (her story, teenage problems etc)

9.30 10.00

Introduction of Associations

BELGIUM (20MIN) AND SLOVENIA (10 min: only the movie)

10.00 10.30

Results of a SPEED DATING (survey), questions, debate

Leader: Anita

10.30 11.00

Coffee break

 

11.00 12.00

Session/teenage, drugs, alcohol, sex: Catherine Wright (Arthritis care)

CATHERINE WRIGHT (their problems, solutions, her story as a patient with JIA) + PSYCHOLOGIST (Greece), 3 x 20 min sessions, leader: Catherine Wright

12.00 12.40

INTRODUCTION of Associations (20 min each)

Sweden + Ireland

12.30 14.00

LUNCH

 

14.00 15.00

SESSION self management + pain management

1.      Self management tool for children with JIA (20min)

2.      introduction of game BORDERGAME (communication and how to deal with the disease in the family/informal way (20min) therapist + psychologist (20 min)

3.      Pain management during the disease and in remission (20 min)

 

 

J.H.CAPPON

 

Therapist + Psychologist from Cappon team

P
hysiotherapist from Cappon team

15.00 15.30

DOCTOR VS. RHEUMATOLOGIST VS. PEDIATRIC RHEUMATOLOGIST and VACCINATION: yes or no and when

Nico Wulffraat

15.30 16.00

Meeting next year + main topics for next year, suggestions

WENDY PRESIDENT OF ENCA

16.00

Photo shooting if necessary J and goodbye

 

 

Wendy Costello 

President